Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB67

Online Survey DAB67

Ymateb gan Cyfrannog ar-lein 67

Evidence from Online Participant 67

Please refer to questions in the Online Survey.

Question

Answer

01

Yes

It’s important for that everyone understands that Autism is an umbrella term that explains and define the autism spectrum. Such as mild moderate and severe autism as well as mentioning Aspergers

02

No

Autism is NOT A DISEASE. The NHS description is better:Autism spectrum disorder (ASD) is the name for a range of similar conditions, including Asperger syndrome, that affect a person's social interaction, communication, interests and behaviour.

03

Not sure

NHS varies and local organisations meaning MENCAP would be perfect as their support with Autism is amamzong.

04

Not sure

I personally think that this bill should include health professionals who work along side those who have autism as they are the experts. Also it would be great to include parents as every person with autism

Is different

05

Ausitksmstrtegy should look st different ways of supporting people with autism and as said before endure that there is support for the parents as well as the individual involved.

06

3 months is not enough time. Unless they already have the experts and parents on board

07

The law should be detailed and through to include everyone on the autism spectrum and ensure that there is support for the parents. 3months after as long as parents are allowed to have their say before its published.

08

That would be two long unless the NICE  guidelines are updated in a yearly basis

09

No

2 months is too long it should happen within a week - what support does the parents get within the two months of waiting?!

10

Yes

Parents and public as well as other health care professionals should be aware of who is involved in the child develop into adulthood and beyond

11

Learning disability team

Autism -specialist nurse or counsellor

Care manager

12

Lack of support from the local council

Lack of knowledge from parents and other health care professional

Lack of or no communication between parents and healthcare professionals

Lack of promotion about services available ie internet, billboards, posters

13

Yes

14

Yes as this will help future parents and generation understand he different individuals who get diagnosed with autism and how long it takes to get a diagnosis as well what support is available

15

It should be written in the guidance.

16

Yes

Organisation should work together to provide the best support for the individuals with autism and their parents

17

It should happen all the time.

Diagnosis are made all the time and every three years can encourage parents and their child to get involved and make friends with other people

Going through the same thing

18

It will be good as it needs to happen